I went to the ER because I could not walk upright or touch my chin to my chest. The doctor was amused. They admitted me, but no one examined me. I was told the brain cannot feel pain. The pain was excruciating. I was told that I could not be experiencing encephalitis or meningitis because I had no fever. I tried to explain that if only my body were capable of throwing a fever, I’d probably feel a lot better. Needless to say, it would take a lot to get me to ever go back to the ER.
This is what it means to have ME and no access to real health care. It means you exist, but not in the minds of doctors, because no one ever taught them how to see you.
Our Kickstarter campaign launches October 22nd. Until then, we’ll be releasing a still from the movie (or behind the scenes) a day. Spread the word! Help us change the face of Myalgic Encephalomyelitis ("Chronic Fatigue Syndrome")