Sunday, October 13, 2013

Why remembering the night I cut off all my hair sometimes gets me more than those times when I can't move my hand

Vanity seems like the least of what we lose when we become ill with M.E. or another other major chronic illness. And yet this was a difficult moment, that day that I (Jen) had to ask my husband to cut off all my hair because I could no longer manage to wash it more the once every one to two weeks.

It wasn't just the hair. It was the not putting on shoes, or clothes, or makeup. I was newly married, young, and I wanted to stay that way for just a little bit longer.

Did you, when you first became ill, have it hit you in a mundane moment, that realization that everything from here on out was going to be different?

Our Kickstarter campaign launches October 22nd. Until then, we’ll be releasing one still from the movie (or behind the scenes) a day. Spread the word! 
Help us change the face of Myalgic Encephalomyelitis ("Chronic Fatigue Syndrome")

No comments:

Post a Comment